Lawmakers Look to Improve Care for Kids with Complex Conditions
October 1, 2018
By: Blythe Bernhard
Source: Disability Scoop
Melissa Herrera says the most frustrating part about parenting a child with complex medical needs is repeating herself over and over to health care providers.
“If you can have something there that communicates the foundation of the child, it can take so much stress away from the parent,” said Herrera, whose 8-year-old daughter Angelica was born with a brain anomaly that affects her hearing, vision, motor control and coordination.
Legislation that aims to help parents like Herrera coordinate their children’s care is moving closer to passage through Congress. The Advancing Care for Exceptional Kids Act, known as the ACE Kids Act, was approved by the U.S. House of Representatives’ Energy and Commerce Committee in September.